8630 Fenton St., Suite 930
Silver Springs, MD 20910
301-608-8998 or 1-800-227-0216
ABLEDATA provides a national database of resources for assistive technology and rehabilitation
Access-Able Travel Source LLC
P.O. Box 1796
Wheat Ridge, CO 80034
Access-Able will assist you and your caregiver with relaxation and leisure activities to balance your life with fun.
Access to Recreation, Inc
Teaches golf, fishing, crochet, bowling, bicycling, crafts, etc. using adaptive devices.
Administration on Aging
One Massachusetts Avenue NW
Washington, DC 20001
A division of the Department of Health and Human services whose mission is to
develop a comprehensive, coordinated and cost-effective system of home and community-based
that helps elderly individuals maintain their health and independence in their
homes and communities.
A site created to be a leading resource related to the
care industry. They offer a nationwide
directory of adult day care centers
American Academy of Family Physicians
P.O. Box 11210
Shawnee Mission, KS 66207-1210
The organization maintains a Web site for patients: www.familydoctor.org/.
American Academy of Neurology
American Academy of Neurology Foundation to help people better understands common disorders of the brain, including stroke, and to learn about those who are living with these disorders.
American Stroke Association
7272 Greenville Ave.
Dallas, TX 75231
Pediatric Stroke on ASA
The American Heart Association provides most of its stroke information through its American Stroke
Association division. You or your caregiver can call and ask for the Stroke Family Support Network; the network will put you in touch with someone who has had a stroke and is willing to discuss the experience.
Americans with Disabilities Act/U.S. Department
Civil Rights Division Disability Rights Section
950 Pennsylvania Ave., N.W.
Washington, DC 20530
Information line 800-514-0301
The federal Americans with Disabilities Act (ADA) prohibit discrimination against people who are disabled.
Aphasia and Neurolinguistics Research Laboratory--Northwestern University
Brain Injury Association of Illinois
P.O. Box 64420
Chicago, IL 60664-0420
Fax (312) 630-4011
Childhood Stroke & Hemiplegia Connections
P.O. Box 3252
Lisle, IL 60532
CSH Connections helps put families of children with hemiplegia, diplegia and/or stroke, in touch with other families in a similar situation.
233 S Wacker Dr. Suite 2400
Chicago, IL 60606
312-726-6200 or 800-221-6827
The Easter Seals organization can help you to become more independent through its educational programs and through its vocational training and employment, assistive technology and rehabilitation services.
Connects older Americans and their caregivers with reliable information on programs and resources that will enable them to live independently and safely in their homes and communities as long as possible.
Health & Disability Advocates
The HDA office address is
205 W. Monroe Suite 300
Chicago, IL 60606 312-223-9600 www.hdadvocates.org/index.asp
Health & Disability Advocates (HDA) is a national organization, based in Chicago, Illinois, that uses multiple strategies to promote income security and improve healthcare access and services for children, people with disabilities and low-income, older adults.
A site created to give consumers a resource where they can research medicare certified
home care agencies, private duty
home care companies and hospice care services in their area,
as well as learn about various state regulations and other home
health care information.
Illinois Department of Healthcare and Family Services (formerly Illinois Department of Public Aid)
Division of Medical Programs
201 South Grand Ave., E.
Springfield, IL 62763
866-468-7543 – Health Benefits Hotline www.hfs.illinois.gov/programs
Illinois Department of Healthcare and Family Services administer a variety of medical/ prescription medicine programs.
Illinois Department of Public Health
535 W. Jefferson St.
Springfield, IL 62761
217-782-3300 – Office of Health Promotion
(Heart Disease and Stroke Prevention Program)
217-782-2913 – Office of Health Care Regulation
800-252-4343 – Nursing Home Hotline
The Illinois Department of Public Health’s Heart Disease and Stroke Prevention Program, in collaboration with its partner agencies are making
significant progress in helping people to address risk factors for stroke.
Illinois Department on Aging
PO Box 19003
421 E. Capitol Ave., #100
Springfield, IL 62794
Senior Helpline 800-252-8966 or 217-785-3356
The department maintains lists of community services available to residents 60 years and older. The agency can assist in connecting you with groups that can help you with prescription programs, homemaker services, transportation, etc.
The Medicare Web site provides a wide array of information about this federal health care coverage program. There is information on plan choices, prescription coverage and various preventive services that are covered.
Midwest Brain Injury and Clubhouse
National Adult Day Services Association
300 N. Elizabeth St.
Chicago, IL 312-226-8720
The Clubhouse is a unique place where individuals can come to relearn skills through the work of the day.
1421 E. Broad Street, Suite 425
Fuquay Varina, NC 27526
The National Adult Day Services Association (NADSA) is a leading voice of the rapidly growing
adult day services (ADS) industry and the national focal point for ADS providers.p>
National Aphasia Association
350 Seventh Avenue, Suite 902
New York, NY 10001
The National Aphasia Association (NAA) is a nonprofit organization that promotes public education, research, rehabilitation
and support services to assist people with aphasia and their families.
National Association For Home Care and Hospice
228 Seventh Street, SE
Washington, DC 20003
NAHC is the nation's largest trade association representing the interests and concerns of home care agencies,
hospices, home care aide organizations, and medical equipment suppliers.
National Family Caregivers Association
10400 Connecticut Ave., Suite 500
Kensington, MD 20895-3944
301-942-6430 or 800-896-3650
The National Family Caregivers Association educates, supports, empowers
and provides public awareness and advocacy services to the public and
to the nation’s lawmakers.
National Institutes of Health
9000 Rockville Pike
Bethesda, MD 20892
The National Institutes of Health Web site contains an A-to-Z index of health resources, clinical trials, Medline Plus and health hotlines. It offers a gateway to the many individual institutes that comprise NIH.
National Institute of Neurological Disorders
National Institutes of Health Neurological Institute
P.O. Box 5801
Bethesda, MD 20824
800-352-9424 or 301-496-5751
The National Institute of Neurological Disorders and Stroke (NINDS) provide a wealth of information on stroke. The information covers causes, prevention, diagnosis and treatment.
National Rehabilitation Information Center
8201 Corporate Dr Suite 600
Landover, MD 20785
800-346-2742 or 301-459-5900
The National Rehabilitation Information Center (NARIC) provides information on the different types of rehabilitation and on adaptive devices and aides to assist you along the road to recovery after your stroke.
National Stroke Association
Link to Guide (PDF)
Guide, written in collaboration with doctors from the International Pediatric Stroke Study, includes information on the basics of strokes, diagnosis (including the delay for infants), as well as treatment options, rehabilitation, school issues and parent-to-parent, kid-to-kid sections.
2551 N Clark Street, Suite 301
Chicago, IL 60614
Open Doors Organization (ODO), a 501(c)3 non-profit organization based in Chicago, was founded in 2000 for the purpose of creating a society in which persons with disabilities have the same consumer opportunities as non-disabled persons. ODO strives to teach businesses how to succeed in the disability market while at the same time empowering people with disabilities.
PEDIATRIC STROKE RESOURCES
American Stroke Association
Section of Website Devoted to Pediatric Stroke
Brendon's Smile - Raising Awareness for Childhood Stroke
Children's Hospital of Philadelphia - Pediatric Stroke Program
National Information Center of Children and Youth with Disabilities (NICHCY)
P.O. Box 1492
Washington, DC 20013
The National Information Center of Children and Youth with Disabilities (NICHCY) is a resource for children and youth from birth to age 22 who have chronic illnesses and disabilities.
Pediatric Stroke Study (Canadian Stroke Network)
9707 E. Easter Lane Suite
Centennial, CO 80112-3747
303-649-9299 or 800-STROKES [800-787-6537]
The association can help keep you up-to-date on the latest developments in medical technology, and breakthroughs in stroke-related products and services.
PRIMARY STROKE CARE CENTER CERTIFICATION
DNV, Det Norske Veritas Accreditation
HFAP, Healthcare Facilities Accreditation Program
The Joint Commission, TJC
Rehabilitation Institute of Chicago
345 E. Superior St.
Chicago, IL 60611
Referral and information line 800-354-REHAB (7342) www.ric.org
RIC offers inpatient, outpatient and day rehabilitation for a variety of conditions and diseases, including stroke.
Retreat & Refresh Stroke Camp
425 W. Giles Ln. Peoria, IL 61614 866-688-5450 www.strokecamp.org
The Stroke Camp offers an enjoyable and fun filled weekend retreat with other survivors, caregivers and family members.
Senior Living Map
A site with a simple goal. Create the quickest, simplest, most pain free method for anyone to
find senior and assisted living.
The Social Security and Disability Resource Center www.ssdrc.com
SkilledNursingFacilities.org is a senior healthcare resource that offers a nationwide directory of nursing homes in the United States.
Provides information on the federal government's two
disability benefit programs, title II social security
disability benefits and title 16 SSI disability benefits.
Covered topics include disability applications, denials
on claims, the filing of appeals, and how the disability
claim evaluation process works.
The Stroke Network
Stroke Survivors Empowering Each Other
P.O. Box 855 Lombard, IL 60148-0855
Stroke Survivors Empowering Each Other (SSEEO) provides
advocacy, support, education and resources to stroke
survivors and their families.
Valuable Resources, Co. (VRC) - Human Resources Firm, Putting People First Before the Paper!
Women’s Health Initiative
The Women's Health Initiative (WHI) is a long-term national health study that focuses on strategies for preventing heart disease, stroke, breast and colorectal cancer, and fracture in postmenopausal women